


Okay, so I realized I have been posting without ever having posted an update to our vacation and Ohio trip. So, here it is.
I think the pictures from
Ohio went very smoothly. Logan's worst day was the first day in the hospital. The naso-gastric tube was a little too much. That and the hours they spent digging in one of his hands for a vein. AFter that Logan did okay. The motility test was long but smooth and then they kept us through Friday (we checked in Wed morning) for another muscle test. That test was kind of funny because they sedated him with a mild drug so that he was still awake. They also gave him lollipops to suck on, but he was very uncoordinated and pretty loopy! It was funny how happy he was and how floppy his muscles were! The tests showed that anatomically everything functions like it should. The one issue that came up was Logan's voluntary muscle contractions. It seems he doesn't know how to appropriately relax/contract in response to pressure, etc. This might be a main cause of his problems. It should be something that he will outgrow in time; however, there is no definite time frame. We of course will continue to try different things to help him feel better. Overall he is doing slightly better. He is eating many more regular meals and sometimes sleeping relatively good! Other nights are still rough and it obviously correlates with certain stomach conditions. But, hopefully he will continue to steadily improve.
While we were in Ohio we were blessed to leave Seth in wonderful hands. We had many family members and friends volunteer to help, for which we are grateful. Seth spent some time with Jim's dad and stepmom, Mike and Linda, as well as a couple days with his Uncle Matt (Jim's twin brother). Despite the fact that Grandma Linda indulged Seth with a new transformer, Seth was exceptionally excited to have Matt hang out with him! These pictures are of Seth and Matt partying it up at Austin Park N Pizza. We are glad Seth was able to have some great family to be here for his first week of school and to help him have fun while we were away. Thanks!
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